Evidence-based books, podcasts, and resources curated from the latest research. Carefully selected for scientific accuracy, community reception, and practical utility to support your recovery journey.
17 resources
Dr. Robert Groysman • 2025
The most comprehensive physician-written protocol guide for Long COVID. Maps symptoms to proven protocols with starting doses and titration tables. Integrates management for Long COVID, ME/CFS, and POTS based on 4,000+ patient cases.
Twenty Long-Haulers and Experts • 2022
First patient-to-patient guide combining personal narratives from 20 long-haulers with expert clinical perspectives. Endorsed by Vanderbilt University. Addresses psychological, social, and practical dimensions of Long COVID recovery.
Various authors • 2022
Practical self-management guide emphasizing the transition from symptom survival to meaningful life reconstruction. Focuses on skill development, psychological adaptation, and daily management strategies.
Various authors • 2022
Accessible guide prioritizing actionable self-management tools without requiring specialized medical knowledge. Includes activity pacing, cognitive rehabilitation basics, and occupational adaptation strategies.
Dr. Peter C. Rowe • 2023
Written by a Johns Hopkins pediatric cardiologist with 30 years of experience treating orthostatic intolerance, ME/CFS, and EDS overlap. Directly applicable to Long COVID autonomic dysfunction.
Dr. Linnea Passaler • 2023
Five-stage framework (Awareness, Regulation, Restoration, Connection, Expansion) developed over a decade of clinical practice. Explicitly addresses dysautonomia including POTS. Goodreads 4.7/5.
Anna Ferguson • 2024
Somatic-focused approach integrating polyvagal theory with practical exercises. Explicit Long COVID and PEM validation from patient reviewers. Step-by-step approach for nervous system regulation.
Edward Bullmore • 2018
Cambridge professor explains inflammation-cognition pathways applicable to Long COVID brain fog. Groundbreaking synthesis showing how immune dysregulation affects mental health.
Dr. Dale Bredesen • 2023
Functional medicine approach to cognitive dysfunction. Addresses nutritional, metabolic, immune, and environmental factors — a systems-based analysis directly applicable to Long COVID's multifactorial pathophysiology.
James Nestor • 2020
NY Times Bestseller. Explains breathing-cognition connections, CO2 tolerance, and autonomic regulation. Directly applicable to POTS-dominant Long COVID.
Deb Dana, LCSW • 2020
Founding member of Polyvagal Institute introduces micro-moments of safety — particularly valuable for severe fatigue. Audiobook narrated by the author to activate ventral vagal (safety) state.
Bessel van der Kolk, MD • 2014
Comprehensive trauma neuroscience for general audiences. Explains how the autonomic nervous system becomes dysregulated and remains in protective states after threat passes. Goodreads 4.35/5 (280,000+ ratings).
Dr. Kevin J. Tracey • 2024
By a leading vagus nerve researcher with decades of work on vagal stimulation and inflammatory regulation. Provides frameworks for evaluating vagus nerve interventions with cautionary notes on unregulated devices.
Toni Bernhard • 2018
Highly regarded chronic illness guide addressing emotional, relational, and meaning-making dimensions. Draws on psychological and mindfulness frameworks for managing profound fatigue and brain fog.
Bateman Horne Center / Open Medicine Foundation • 2025
First comprehensive clinical care guide authored by experienced practitioners. Addresses diagnostic challenges and symptom heterogeneity. Gold standard institutional resource for patients and providers.
Patricia Lockwood • 2025
Autofiction by an author with lived Long COVID experience. Narrative structure deliberately mirrors cognitive disruption and fragmentation. Literary validation of the disorienting nature of cognitive symptoms.
Emily Mendenhall • 2026
Medical anthropology examining how Long COVID fits within longer histories of contested chronic illnesses. Critiques psychogenic frameworks. Published by UC Press.
11 resources
Dr. Zeest Khan • 2025
Clinical-patient hybrid model with actionable steps and a personal recovery journey. Stanford-trained physician translates complex research into practical guidance on autonomic dysfunction, OT, and executive function.
Dr. Funmi Okunola, MD • 2025
Credible destination for Long COVID — integrates a practitioner directory, accredited education, and a symptom checker tool. Covers FDA-approved latent virus testing and reducing chronic inflammation.
Emily Kate Stephens & Gez Medinger • 2025
Investigative journalism approach to energy-limiting chronic illness covering ME/CFS, Long COVID, EDS, POTS, MCAS. Biweekly 40–60 minute episodes. Co-hosted by Long COVID Handbook co-author Gez Medinger.
Dr. Binita Kane & Helen Oakleigh • 2025
Clinical education series from a UK Long COVID clinic. Addresses cutting through information noise and distinguishing evidence from hype.
Patient-created and self-funded • 2025
By and for Long COVID sufferers. Explores practical interventions through medical experts, researchers, personal experience, and recovery stories. Emphasizes the practical and the hopeful.
Dr. Eleanor Stein • 2025
Long-form interviews with clinicians, researchers, and people with lived experience. Recent episodes: MCAS/POTS/Long COVID framework with Dr. Ilene Ruhoy, movement without crashing, mast cell activation.
Howard Forman & Harlan Krumholz (Yale YSPH) • 2025
University-affiliated clinical journalism. Key episodes include 'What Have We Learned About Long COVID?' with Dr. Akiko Iwasaki and 'Is Long COVID One Disease or Many?'
Anna Marsh • 2025
Addresses CFS/ME, Long COVID, post-viral fatigue, and mold illness through a nervous system and trauma-informed lens. Staged recovery approach: episodes for housebound, bedbound, and high-functioning.
Dr. Andrew Huberman (Stanford) • 2025
Extensive coverage of mechanisms relevant to Long COVID: nervous and immune system integration, neuroscience of stress and trauma, glymphatic system and brain health.
Dr. Rangan Chatterjee • 2025
UK-based health podcast. Episode 619 covers social isolation's inflammatory effects and immune suppression with Prof. Rose Anne Kenny — mechanisms directly relevant to Long COVID.
Vincent Racaniello + Daniel Griffin MD • 2025
Authoritative virology and immunology context. Clinical updates on COVID-19 vaccine effectiveness and post-COVID complications. Professional and educated lay audience.
4 resources
Investigative science journalist, Long COVID patient since March 2020 • 2025
7+ million cumulative views. Co-author of The Long COVID Handbook with Prof. Danny Altmann. Interviews world-leading clinicians and conducts patient-led research studies.
Recovery story documentation • 2025
Documents recovery journeys including Kim Sorenson's progression from 20-mile daily hikes to bedbound with ME/CFS and back to full recovery through nervous system retraining.
Dr. B (Medical educator) • 2025
Medical education channel addressing Long COVID pathophysiology. Recent: 'Why Long COVID Won't Stop' with novel mechanistic findings. Combines clinical education with Long COVID symptom analysis.
Jill Brook • 2025
Podcast available on YouTube. Recent episodes on vascular compression phenomena — ~97% of dysautonomia patients show May-Thurner compression, 95%+ show Nutcracker phenomenon.
6 resources
Yale School of Medicine
Immunology, vaccines, and Long COVID mechanisms. Leading authoritative source for emerging evidence on immune dysregulation and post-viral syndromes.
Johns Hopkins Medicine • 2024
Pioneer in pediatric POTS and orthostatic intolerance research. Foundational for understanding haemodynamic symptoms in Long COVID.
Bateman Horne Center
ME/CFS specialist and lead author of the 2025 MERC Clinical Care Guide — the first comprehensive clinical care guide for ME/CFS, Long COVID, and related conditions.
Neurologist
Neurologist developing the Septad Framework linking 7 interconnected systems. Frequent contributor on MCAS/POTS/Long COVID overlap and multisystemic presentations.
Scripps Research
Research on vagus nerve stimulation and immune system applications. Cardiologist and digital medicine leader with extensive Long COVID commentary and evidence synthesis.
University of the Pacific — Exercise Science
Leading researcher on post-exertional malaise mechanisms. Frequently cited source on pacing, activity management, and the physiology of PEM in ME/CFS and Long COVID.
6 resources
Clinical care & research
2025 Clinical Care Guide, clinical education, and treatment protocols for ME/CFS, Long COVID, and related conditions. Gold standard institutional resource.
Nonprofit research
World's largest nonprofit for complex chronic disease research. Funds biomedical research into ME/CFS, Long COVID, and related post-viral illnesses.
Clinical collaborative
First Clinical Care Guide for ME/CFS, Long COVID, and related conditions (2025). Living document authored by experienced practitioners for patients and healthcare providers.
International physiotherapist collective
Evidence-based pacing and activity management resources built by physiotherapists with lived experience of Long COVID. Practical guidance for preventing PEM.
Vanderbilt University
Curated apps, books, and podcasts for Long COVID patients. Institutional recommendations from Vanderbilt's Health & Wellness program.
Yale University
Home of the Health & Veritas podcast with multiple Long COVID episodes featuring leading researchers including Dr. Akiko Iwasaki and Dr. Basmah Safdar.